Come "sit and sew" with us to make a Rare Bear for the Rare Science organization! Each bear will be sent to the Rare Science organization for donation to a child with a rare disease.
There are millions of children with rare diseases. Since these diseases are not normally the focus, these children are often misdiagnosed and/or do not have medicines available for them. 30% of these children die before their 5th birthday. RARE Science believes and have already demonstrated that by empowering Parents and Foundations with tools to navigate the healthcare system, build patient communities and clinical/research teams focused on these diseases, we can accelerate finding more immediate treatments. RARE Science facilitates a focused, accelerated approach that addresses the urgency needed to help the most vulnerable of patients, rare children.